Inspirational
Stories
Click
here to listen to The
New York Times Patient Voices: Pancreatic
Cancer.
Listen to six stories
of individuals living with pancreatic cancer as featured in the
September 17th edition of The
New York Times.
Click
here if you would like to submit your own inspirational
story to PanCAN.
Would
you like to share your experiences with pancreatic cancer and give
support to others? If so, you should consider joining our
Survivor and Caregiver Network.
The
Survivor and Caregiver Network is a group of volunteers throughout
the U.S. who are available to communicate one-on-one with those
diagnosed with pancreatic cancer and their loved ones. The
volunteers are pancreatic cancer survivors and caregivers who have
provided their contact information to be shared with others through
the PALS program. Contact can be made via phone or email and
serves as a helpful source of encouragement, support, and inspiration.
Click
here if you
would like to participate or volunteer in this program.
In 1999
I received the biggest shock of my life: I was told by my
doctor that I had pancreatic cancer and I was given little
hope for survival. It began when I woke up one Monday
morning with a stomach ache. I thought it would pass,
but on Tuesday it was still there, so I called my doctor.
He said to “give it another day,” and, if it was not better,
to come in. On Wednesday when my doctor saw me, he was
alarmed. He called in two nurses and ordered several
tests, including a blood work-up, which he sent to the lab
for processing.
On Friday, he called
me and told me I had an appointment with my internist in one
hour. That doctor told me I had an appointment for a
sonogram at the hospital and to come to his office as soon
as that was completed. After that, there was a CT scan,
which indicated that surgery was possible. An oncologist
took over and sent me to the hospital for possible surgery.
I sat in the doctor's
office, praying that he would be able to operate. He
agreed to operate and I thought I was home free. However,
when the operation was over he informed me that there was
“a 90% chance” of the cancer returning. So, I had 28
sessions of radiation therapy along with chemotherapy.
It was not easy, but I was determined to succeed—which I did.
I thought I was cancer free, but sometime later the cancer
spread to the liver. My oncologist said chemotherapy
was available, but there was one chance in five of success.
However—it was successful and when I came into the office
for treatment, the whole staff stood up and cheered.
I have been cancer
free since then and am able to manage my house and garden,
and, at age 84, I am still running my craft business for the
benefit of my church.
I have been called
a miracle and an inspiration to everyone because I have fought
and won all the problems along the way.
I cannot stress enough
that the reason for my success was early diagnosis, always
following my doctor's orders and constant prayer—and never
give up hope.
Along the way I realized
that I had been given a wonderful life, a good family, good
education and wonderful opportunities in my field of work.
I married and had three boys, and they are all doing well.
Now, I am able to use my talents to help less fortunate people.
I tell my doctor that he saved by life, but he doesn't take
the credit.
Lillian
S., Cold Spring Harbor, NY 9/26/08
|
I love my life and the people in it. I live life to
the fullest because although it is true that we don't know
what we have until it is gone--it is also true that we don't
know what we've been missing until it arrives. The happiest
of people don't necessarily have the best of everything; they
just make the most out of everything that comes their way.
On
July 9th of 2007, I was diagnosed with a rare type of pancreatic
cancer, neuroendocrine carcinoma. I was devastated,
that was not even the word, there were no words that could
describe how I felt! I was a 23 year old woman getting
ready to get married, just started the real estate business,
sold 3 houses and now my whole world had come crashing down
into little pieces. I wasn't sure how to feel, but I
felt everything. I was sad and thought why me? I was
mad at everyone in the world and mostly I was scared to DEATH!!!
There are not too many 23 year olds that can say they have
had to look mortality in the face and thinks, “Wow, am I going
to DIE!”.
My
mother made one thing real clear to me, no matter what the
case, I WAS GOING TO FIGHT, and she was going to make sure
that I did! Although I agreed to go full throttle against
the cancer--only more bad news kept coming. The cancer had
spread to my liver, completely destroying it! On top of cancer,
I needed a liver transplant, and fast! So, I started
out with 4 months of chemo to shrink the tumors, which was
hell! Once I had finished the chemo, I was so fortunate
that the tumor had shrunk and I was able to have the surgery.
There are so many folks that do not get that opportunity.
On Dec. 10 th , 2007, I had a procedure called the Whipple
Operation in which the surgeon removed the head of my pancreas
to ensure the cancer was gone.
After
the operation it was time to put me on a waiting list to get
a new liver. Now, I knew as well as my family that if I didn't
get a liver soon, I was going to DIE. The hospital told us
that I was eligible to have a living donor which meant someone
who had the same blood type, body type and much more medical
similarities could go under the knife and give me half of
their liver! Both livers would grow back, that is unbelievable.
The Liver is the ONLY organ that can regenerate! So,
please be a donor. My close family all wanted to be
tested. But, the first person that was tested was my
cousin Miranda (27) who has always been more like a sister
wanted to help me. She was a perfect match! We asked
her if she would consider being the donor for me and she said,
"I never had to think twice about it, I knew if I didn't,
Desiree would not be able to wait."
We
flew Miranda from Florida and on March 3, 2008, we both went
under the knife! Both surgeries went great and we were out
of the hospital in 1 week! Can you believe that???
I will NEVER be able to give Miranda the thanks for saving
my life, but she knows she "SAVED" me that day!
After the liver transplant, Miranda was able to go back home
but I wasn't out of the woods. I had to do 4 more
months of chemo, take 26 pills a day for anti-rejection so
my liver wouldn't be rejected. Life was starting to look up!
I am not saying that I didn't go through pure and agonizing
HELL to fight this disease because I have and have been to
the DARK SIDE of life thinking, “WHAT'S THE POINT???”.
I am saying... YOU CAN BEAT THIS CANCER! I can finally
say that I am CANCER FREE and a SURVIVOR! I still take
meds and go for check-ups often and will have to do both for
the rest of my life but that is worth having a SECOND CHANCE
at LIFE!
Thanks
to my cousin Miranda for saving my life, my mother (Donna),
father (Henry) and my sister (Hope) for never letting me give
up, all of my close family--you know who you are, my best
friend Britney for making me smile through it all, Brit's
mom, dad, husband and his family for all of their support,
everyone who had anything to do with remodeling my room, my
fiancé's family and all who prayed for me. Last, but
definitely not least--my fiancé, Danny for staying
by my side NO MATTER how bad things really were in our lives.
I LOVE YOU WITH EVERY BIT OF MY BEING! If I have forgotten
anyone, I am sorry, so I will end with this...to anyone who
was there when I really needed you: I LOVE YOU ALL & WILL
NEVER BE ABLE TO THANK YOU ENOUGH! So, to all of you who have
been where I have or have known someone with cancer: just
know that there is HOPE! I am PROOF!
Desiree
H., Richmond, VA 9/19/08 |
Many
of you know me, some may not. My name is Jeffrey and 5 years
ago on July 1, 2003, I was diagnosed, after 12 hours of surgery
with adenocarcinoma of the pancreas. I was given 6 to 9 months
to live, and even the first oncologist I met with said radiation
might extend my life to one year, maximum…..definitely a challenge
at the very least.
My
sweet and devoted wife Sally and I embarked on a journey….one
that so many of the Pancreatic Cancer Action Network's clients
begin and unfortunately face every day. It was a search for
answers, for reasons, for reality and for life.
The
list of tests, physicians, treatments and day to day maintenance
I could list would most likely be paled by that of others.
I am truly blessed. My treatments through the years, although
complex at the least, were nothing in comparison to what I
am about to share.
On
July 1, 2008, Sally and I threw a celebration of life for
my recovery…..5 years of survival, and according to my C.T.'s,
exams, and blood work, I have reached this elusive goal totally
free of all cancer.
We
did not take this lightly. At our party, which was a celebration
of life (mine) we had over 125 of our local Laguna Beach supporters
show up….and even though this wasn't a fundraiser as such,
we have forwarded $1,600 to the Pancreatic Cancer Action Network
and more is forthcoming.
As
many of you know, I have spent the past 4 years, since recovery,
paying my great debt and fortune forward. I am a Survivor
and Caregiver Network volunteer through the Pancreatic Cancer
Action Network who can always be counted on to talk, be interviewed,
be taped, and do whatever I can to those who find themselves
facing the same insidious disease that I dealt with as well
as those wonderful members of the Pancreatic Cancer Action
Network. Over the years, I have lost many of my phone and
email “buddies”. It breaks my heart every time I try to follow
up on a member of our community and find that they have passed
on. And with that in mind, not trying to be morose, I am forever
grateful to my family, my friends and support group, my physicians,
who to this day watch over me like Gods, and most importantly
to the Pancreatic Cancer Action Network.
I
am forever in your debt, and will be here for whatever help
and support I can provide, whether it be for a Survivor and
Caregiver Network request, or to help the organization in
any means possible – those who know me know you only need
to ask.
At
this unbelievable occasion, both Sally and I want to send
you all of our love, thanks, and indebtedness….I am here for
all of you, 24/7.
Thank
you for more than I can ever put into words.
Jeffrey
Ross, Laguna Beach, CA 9/23/08 |
In late
August of 1993, while on a summer vacation in Maine, I suddenly
was unable to keep food down. Returning to Albany (our home
at the time, as I was Chancellor of the State University of
New York system), I was diagnosed with a malignant tumor originating
in the ampoule, where the common bile duct from the pancreas
and the liver enter the duodenum, presumably reaching up into
the pancreas. The technical term that I lifted from my medical
records was a pancreatic adenocarcinoma, f or which
in September of 1993 I had a pancreaticoduodenectomy ,
or pancreatic resection, more commonly called a Whipple
operation . The Whipple, as most of the readers of this
will know, is a very big abdominal surgery. In my case, it
cut out the entire common bile duct, duodenum, and gall bladder
and about one-half of the pancreas and the stomach, and then
engineered new ducts from the liver and the pancreas directly
into the small intestine below where the duodenum had been.
I was told that complications are common, and I was some 40
days in the hospital after the surgery trying to get rid of
an abscess and pancreatitis.
The trick was to begin digesting food again. I eventually
learned to thread a 23 inch nasal-gastric tube every night
through my nose and dripped over the next eight hours some
14 hundred calories of liquid nutrition into my stomach. (The
pump and the liquid were in a cute little blue backpack, so
I could talk, drink, sing, and even eat a little while I was
“on the tube.”) The nasal gastric tube is not as tough as
it sounds. (Even doctors and nurses sometimes think it is
harder than it is because they had to try it only once during
their education and never really learned the tricks.) I did
this for about 5 months, and I slowly regained about one-half
of the 70 pounds that I had lost (which, as I was a good 35
pounds overweight to begin with, left me about where I should
have been). But I am getting ahead of my story.
At the time of the surgery there were noted some lymph
node metastases , or nodes contained metastatic pancreatic
cancer that caused a tumor in my neck that my doctor
eventually cut out. When this was noted on the CT scan after
about a couple of months, I got some very discouraging news.
(I even heard a doctor say something about “three to five
months.”)
About this time, I changed my treatment institution
location to Buffalo and had the treatments (radiation and
Chemotherapy) carried out under the direction of the original
institution. Buffalo is where I had lived before moving in
1988 to Albany and where my wife still spent about one-half
time as vice president for planning at the treatment institution.
By February, I could no longer function effectively as Chancellor
of the SUNY system and wanted to give the trustees time to
start a search for a successor. So I announced my intention
to resign as of the first of March 2004. I returned to Buffalo,
bought a house (we had lived before in the official residence
of the President of Buffalo State College), and I was now
near my doctors and seven days a week with my wife.
In Buffalo, I continued the radiation and chemotherapy. I
gradually regained enough of my weight. By the fall of 2004
I began a little teaching at the State University of New York
at Buffalo. By January of 2005, I was teaching a full load,
and by the fall of 2005, I began accepting doctoral students.
Within a few more years, I had the largest number of doctoral
students in the department and the largest grant support for
my research which was on higher education finance in
both US and international perspectives. In 1999, I received
a planning grant from the Ford Foundation to plan a center
for the study of international comparative higher education
finance and accessibility: essentially a study of the worldwide
shift of higher education costs from predominate reliance
on governments and taxpayers to being “shared” with parents
and students -- and the policies and tools (such as grants
and loans) by which access is maintained or even expanded
in the face of these increasing costs. (We're pretty used
to this in the US, but it has been a terrific shock – and
bitterly contested – in most of Europe as well as in the former
Communist world and most low and middle income countries.)
When I went off the payroll at the University at Buffalo in
the summer of 2006 I had brought in well over $1.5 million
in grants, completed 20 Ph.D. students (most of them international),
and planned and hosted conferences in Dar es Salaam, Nairobi,
Arusha, Prague, Moscow, and Wuhan. I have written one single-authored
and co-edited another 4 books, plus 7 monographs and reports
and some 40 articles and book chapters. I am still coming
into work finishing the last few students and my research,
and another book.
Best of all, my two children have married, prospered, and
produced three gorgeous and extremely precocious grandchildren.
I have been cancer free now (as of the fall of 2008) for more
than 15 years. I know that I am incredibly lucky. I had great
medical care, a wonderful wife, an evidently not too aggressive
cancer, and undeservedly great luck.
D. B. J., Buffalo, NY 9.10.08 |
It's
a dreary day in Chicagoland and I stumbled upon this encouraging
site reluctantly. I had my first hospital admission
in my adult life over the summer aside from childbirth admissions
4 times within the last 14 years. I don't claim to be
a "survivor" yet in the literal sense of the word
but I do hope I could be another source of inspiration for
young people going through this tumultuous journey. I had
pancreatitis last June and had met wonderful doctors and nurses
as I sat on the other side of the healthcare spectrum. I am
an ICU nurse too, you see....only as far as you can ever imagine
from oncology as possible. Other than what I recall from school,
this aspect of medicine and nursing is foreign to me.
I had a very compassionate
surgeon and an equally efficient GI doc who guided me through
the maze of tests--all of us hoping not to see what is likely
the probable result.
To make a long story
short, I was referred to the best of pancreatic oncology surgery
in the Heartland, if not the nation. I had 4 1/2 hour long
pylorus-preserving Whipple (I hope I said that right!) and
he and his staff were very encouraging in their dealings with
me and my husband.
It was a nightmare
just to hear the words 'pancreatic cancer' but to have it
dissected with a mind of a paranoid nurse was even worse!
I had said I don't
claim to be a "survivor" in the least, especially
literally but having 'survived' a plunging depressed emotional
rollercoaster those first few weeks, having worn my slippers
thin coasting the hallways of the hospital hours and days
after my surgery, having that great first fart a mere couple
of days later and my real meal on the third day, not to mention
the most awaited 'awakening of my GI tract' as I had a BM
the next day....these are my tiny miracles! The happiest recollection
I had after I opened my eyes was "Look, hon!", I
told my hubby,"No pain!"
I have opted, after
several heated discussions and immeasurable tears shed deep
into the night, to take part in a vaccine study for pancreatic
cancer and I have had 2 agonizing (but hopefully, rewarding)
sessions already at the Cancer Care Center. Next week would
be the start of the first cycle of my Gemzar chemotherapy,
followed by weeks more of 5-FU with radiation therapy. In
all honesty, not a lot of my friends could believe I actually
look forward to that!
I am no longer in
denial! I have accepted this as my challenge at this time
in my life...not a roadblock. It would take more to stop me
and at 37, hey! I am not half-done with what I set out to
do.
So, in retrospect,
I am writing this here as a banner of inspiration both to
myself (seeing this in print is like a validation of myself
and what I can and will do) and to those out there sitting,
wondering what tomorrow might bring. Don't wait...set out
to make your own trail. It matters not how long it takes you
as long as you get to where you want to be in the end. This
is my story...a beginning to a second life I am still blazing
trails with towards a happy ending. The best thing is, I had
pushed myself to make the journey and I am happy and grateful
with what I have and see along the way today. As my doctor-for-life
(Dr T) said,"Hey! There is always HOPE"...that,
in itself, is worth basking in the hardships of the trail
and pushing on towards the summit of my goal.....to grow old
& beautiful with my husband and wear fabulous gowns
at each of my 4 children's weddings. And, yes, to attend Dr
T's retirement party!
Jessi
P., Arlington Heights, IL 9/4/08 |
This
summer started out with my dad being as proud as a parent
could be. I graduated from Purdue in May and my sister landed
a wonderful job in the same month. My dad's family was blossoming
and becoming everything he had hoped for.
While at school,
my mom had called and informed me that my dad had not been
feeling very well and was complaining about back pain and
not having the ability to eat without his stomach hurting.
Days later, he seemed to have turned a yellowish color which
was caused by a blockage and the pain had become so bad that
he needed to be rushed to the hospital. At first the doctors
believed that he had been suffering from pancreatitis and
insisted he stay and have a stint placed in his duct which
would help him be able to eat and process foods and bile...
When the stint didn't work, doctors performed numerous tests
and kept insisting that it was a hidden gall stone. It wasn't
until we traveled to the University Med. Center that we discovered
he actually had a tumour at the head of his pancreas.
After many PET scans
we nervously waited for the call approving him for the Whipple
surgery. It was a very emotional day for us all and was the
first good news we had heard in weeks! When the day for the
surgery came, our family was very up-beat and ready to head
down the road to recovery. Three hours into the surgery, the
doctor came out and informed our family that he had bad news...
The cancer had spread into the liver and one lymphnode, he
was unable to complete the surgery but rerouted a few things
that should be able to help him be more comfortable.
It has been
one week since the surgery and my dad is recovering at a fast
rate! He isn't able to eat much, but that is to be expected.
Next week our family will be meeting with a few doctors from
a Cancer Center to "game plan" his chemo and radiation.
This time
has been very emotional for our family. We really do not know
what to expect but we take one day at a time. My mom has been
AMAZING and strong. Her faith and hope is an example for us
all to follow. My dad stays up-beat and continues to joke
and be his "old-fashioned" self. He takes great
joy in the smallest things in life and embraces his life and
family with amazing compassion.
We are going to
get through this! My dad is a fighter and he has a great team
(family and friends) behind him!! Our community has been supportive
and their love lifts us up.
Our "journey"
begins... "Don't stop believing."
Melissa
M., Granger, Indiana 8/20/08 |
I
was diagnosed over six years ago with inoperable adenocarcinoma
of the pancreas. I was given a death sentence of three to
four months to live. It has been six years and two surgeries
later and I am still around. I would like to share my
story with others to offer them hope because if I can make
it six years so can anyone else.
No one can understand
what being told you have three to four months to live means
unless it is told to you. You are left with a horrible fear…fear
of the unknown, fear of what will happen to your loved ones,
fear of how the bills will be paid, and a fear of how you
can get the strength to face what lies ahead of you.
After my initial diagnosis, I was consumed with my death sentence.
I looked at everyone around me and I thought how lucky they
were. They could still laugh and enjoy life. Every
time I looked at my children and grandchildren I felt sorrow
because I would not be there in the future to share good times
and memories. Everything I heard or read about pancreatic
cancer made me feel even more hopeless. I kept thinking to
myself that if I could just find one person who survived even
a couple of years than maybe I could also.
During my time of
misery, I happened to watch a television show about a woman
who had been diagnosed with inoperable pancreatic cancer,
but after receiving chemo and radiation she was able to have
the surgery to remove the cancer.
That television
show and the patient on there changed my life. For the
first time I felt there was hope that I might be able to survive
more than a few months. I lived in Houston close to one of
the best cancer hospitals in the world. I found a wonderful
oncologist who became my General leading me into battle against
this horrible monster called pancreatic cancer. After
months of chemo, experimental drugs and radiation my tumor
shrunk and I was able to have the Whipple surgery. For
three years the beast inside of me was quiet, however it returned
in the form of three nodules in one of my lungs.
I again went through
chemo and experimental drugs for several months. Last
December, I had lung surgery to remove the nodules…two were
noncancerous and one was pancreatic cancer.
People have told
me numerous times what a strong will to live that I must have.
In some of my darkest moments I wondered how it is living
when your life is consumed with doctors, CAT scans, chemo,
needles and blown veins? How is it living when you are
facing cisplatin, gemzar, tarveva, avastin, radiation and
adenocarcinoma? NO, I did not have a strong will to live.
I survived because of the love of my family, the knowledge
of my doctors and the support of my friends. Most of
all I survived because of the helping hand of my faith which
led me to find HOPE through the stories of others who survived
PC. These survivors and their stories gave me the courage
to keep fighting.
Am I cancer free
today? No, I will NEVER BE FREE OF CANCER. I know
that at any time cancer is just a CAT scan away; that one
CAT scan can bring the monster back and turn my world inside
out and upside down. In the last six years, cancer has
shown me a world that I never knew existed. It has shown
me a world full of heroes; those brave strong people like
you and your loved ones who fight this disease every day.
I will never be cancer free because it will always be with
me; it is who I am today.
Susan
S., Houston, TX 7/30/08 |
This
one may be hard to believe, but we have doctor's reports,
lab tests and CT scans to support our claim—but since The
Pancreatic Cancer Action Network is “the only national organization
with a comprehensive plan to advance research, support patients
and create hope in the pancreatic
cancer community” I wanted to tell you about our MIRACLE.
Perhaps it will give others hope. I know we are
all praying for a cure. My husband, Henry, was diagnosed
with pancreatic cancer on August 1, 2007. The doctor
said it was Stage 4 since one of the tumors was wrapped around
the Celiac Artery, making it inoperable.
To shorten this,
he had 5 months of chemotherapy, then 5 weeks of daily radiation,
then after a 3-week wait, surgery was scheduled (for April
9). We knew that when Henry went in for surgery there were
at least 3 outcomes—he might not be able to make it through
the surgery; the surgeon could get in and decide that he was
unable to operate; or there could be a successful outcome.
(My husband had agreed to a pancreatectomy.) Well, when
the surgeon went in to remove the tumors, there was “no evidence
of any tumors” – not even dead tissue! He went ahead
and did the Whipple “as a precaution.” For those doubting
Thomases (there are always those), they know for a fact that
he was correctly diagnosed with pancreatic cancer because
they did needle biopsies and got actual pancreatic cancer
cells out for confirmation. In addition, he had numerous
CT scans and doctors watched their size and location during
the entire treatment period.
We believe it was
the prayers of many people that completely healed my husband.
The doctors know of no scientific reason for this—all
tissues, biopsies, etc. have gone to several places for study
and confirmation—now he is just recovering from the Whipple,
which of course isn't any fun.
You may never want
to spread this story, but we know there are so many people
out there looking for a cure, looking for hope. We think
my husband's story gives others hope. There have been
two events in Henry's honor to raise funds for pancreatic
cancer research (and a third one is planned), and although
Henry got his miracle, we know many more are still looking
for that cure. So the funds which were received went
to pancreatic cancer research.
Lou
F., Grayson, GA 7/10/08 |
Diagnosed
May 20, 1996 and now it is May 20, 2008. Thanks for
12 years and not 3 months. Keep hoping, keep praying,
keep working. Appreciate every day. Thanks.
Stan
H., Turner, ME 5/20/08 |
SUE'S
STORY... (in my own words)
In 1999 I was diagnosed
with Pancreatic Cancer which was treated with surgery (Whipple's
procedure) along with radiation, followed by chemotherapy.
I have always been reasonably fit and have exercised and eaten
well most of my life, so after the initial trauma of the treatment,
I continued to lead an active life.
8 years on...
In May of 2007 during
a routine check up, I was unfortunately diagnosed with Stomach
Cancer which was believed to be in the area of the previous
radiation treatment I'd had back in 1999. Once again, surgery
was the first option, followed by chemotherapy.
Soon after my surgery
and just prior to commencing chemo, my brother and his wife
visited from interstate. They had previously mentioned to
my husband and I about their magical experience in Tasmania
climbing Cathedral Mountain (2730 ft). They did this early
one morning while on Christmas holiday and sat at the summit
enjoying a coffee as they watched the sun come up.
Their experience
totally resonated with me and seemed like a wonderful goal
to have once I completed my chemo treatments. My brother said
to me if I could climb the mountain, he would somehow get
the BBQ to the summit and cook me a BBQ breakfast topped off
with a glass of champagne. I guess everyone needs something
out of the ordinary to help them through challenging times
and this was my thing to do.
I finished the chemo
treatments early in November and as we were planning the details
of our Christmas gathering, this all became a real and possible
goal.
After chemotherapy...
Not being in the
best physical condition due to the taxing chemotherapy regimen
and having lost a lot of weight and strength, I was also faced
with an added dilemma of a low functioning pancreas. My pancreas
was now destroyed from the previous cancer, and I had become
diabetic.
Upon arriving at
our holiday destination, nobody was particularly keen for
me to attempt the climb, so my first challenge was to prove
to them all that I was strong enough to climb the mountain.
So, the training
towards my goal began with 5 km bike rides which I initially
struggled with but amazingly progressed at a great rate. In
fact, in no time at all, we were riding around 30 km a day
over hilly terrain. We set a time frame of 2 weeks into our
holiday with making it to the summit in mind. Nothing more,
nothing less.
2 weeks on...
The big day finally
arrived and it was a hot one so we set off at first light.
There was myself and 6 other family members ready and raring
to make it to the summit. With everyone's support and patience,
I managed to keep up with the pace only pausing for a few
jelly-bean stops along the way to keep my blood sugar at an
acceptable level.
I did it, we did
it!
Family and friends
live through a serious illness with you, so to see the pride
on their faces, the huge smiles and hugs - it is a very humbling
and emotional moment.
A few weeks on...
am I crazy or?
The same 6 of us
were traveling to Tasmania with a more challenging mountain
to conquer. Cradle Mountain (4944 ft) was a challenge of a
far greater magnitude. We were faced with very cold winds
and a climb that finished with a rock scramble. Everyone supported
each other and worked together to make it to the peak. On
a few occasions tears brought on by fatigue almost stopped
us, but with the never-ending encouragement we finally conquered
the climb to the top. More tears and hugs all around. I can
honestly say if I had been doing this climb alone I would
not have made it. The camaraderie and support was definitely
what got us there as it was a difficult climb for us all.
Spirit and love...
The mind and body
really are two different identities. We sometimes have a challenge
in our mind but the body is definitely unable to carry it
out. I felt such an overwhelming sense of pride that my body
was up to the task. The aches and pains were well worth it,
the bond that was formed was priceless and the views breathtaking.
Then of course there was the issue of making it back down
which was a 6 hour trek.
Never limit what
you think you can achieve as you will be amazed at what your
body and mind can accomplish.
Sue,
Brisbane, Australia 5/15/08
|
A
5.5 cm tumor was discovered on the tail of my pancreas in
November of 2006. I was 48 years old at the time. After an
extensive endoscopic ultrasound at a University Hospital,
it appeared surgery was possible. Surgery was attempted, but
could not be done due to the location and advancement to the
spleen and stomach. Using chemotherapy alone, the tumor shrank
to 2 cm within 2 months, and the other areas where the cancer
had spread diminished accordingly.
For 18 months I
have followed a very 'whole foods' and organic diet and have
had over 60 infusions, mostly Gemzar, oxaliplatin and Tarceva.
I am just as positive
today as I was 18 months ago that I am going to get through
this, and believe this is one of the reasons I have done well.
Susan
K., Battle Ground, WA 5/14/08 |
In
February, I had my 6th anniversary of being cancer free. I
was diagnosed when I was 41 years old with pancreatic cancer.
I didn't ask nor did I want to know what stage I was, I didn't
feel it was relevant or important. The key was to beat it
and win, which I did.
I had a Whipple
procedure at a University Cancer Center with a surgeon who
is the "go to" guy in these parts. I followed up
with 6 months of chemotherapy with an oncologist at the same
location. What a great team. I feel it's important to find
the best experience to get the best results.
Let me give some
straight forward advice, stay away from survival rates, they
are not important or relevant to anyone's survival. They place
a negative in your head that is hard to overcome. Do some
homework and check with any resources available to find the
best doctor, the most experienced you can get. In my opinion,
go with tried and true treatments to get the best results,
in other words, go with the treatments that have shown results.
A friend of mine
was recently diagnosed with cancer of the bile duct. It was
amazing how many doctors wanted to do the surgery, but lacked
the experience. Statements like “I've done a couple” or “I
believe I can do it” by surgeons may not be in your best interest.
I was discovered
to have type 2 diabetes a couple of years afterward.
The hardest part
is the mental game it plays on your head. You feel like you've
been hit by a car and you're trying to find a way to get back
on your feet. The cancer sneaks up on you and it's the last
thing you suspect. Work through it the best you can and be
sensitive to those around you. Everyone wants to help you
and don't know how. Be as strong as you can for those around
you. There's nothing wrong with an occasional pity party,
but you need to not drag yourself and others down around you.
It's just as hard on your loved ones as it is on you. Be as
positive as possible, it will help you heal. You may want
to try some positive affirmation tapes to help your body heal.
Jim
S., Glendale, CA 4/1/08 |
STATISTICS
CAN BE WRONG
Don't be unwilling
to question the Doctor
On a warm April
morning in 1992, my wife Carolyn and I were anxiously waiting
at a hospital in Santa Rosa, California. We were waiting to
see the Chief of Surgery.
The story begins
in February of that year. I noticed a feeling of tenderness
on the right side of my lower abdomen. There wasn't any real
pain, just tenderness, and after all, I was over 61 years
old. I convinced myself that I should expect some aches and
pains and I let it go. But, when I went for a check-up with
my primary care physician a few weeks later, I mentioned the
tenderness to him. He examined me and told me that he thought
that I had a hernia, and arranged an appointment for me to
see one of the staff surgeons.
When I was 18 years
old I was working with a bricklayer building a chimney on
the roof of a house, and as kids sometimes do, I got careless
and stepped off the roof. I was lucky enough to land on my
feet, but I was not so lucky to have the landing result in
a hernia on my left side. In any case, I was aware of what
a hernia felt like and I didn't believe that I had one. But,
I thought I might as well go through the process and see what
would happen.
The appointment
with the surgeon was the beginning of a remarkable series
of events that led up to what, as Paul Harvey says on the
radio, is “The Rest of the Story”.
After a short, cursory
examination, the surgeon confirmed my suspicions that I indeed
did not have a hernia. He made a few comments about my primary
care doctor, and then told me that the symptoms I described
could be connected to urological problems and suggested that
I see an Urologist.
So, off I went to
make the appointment with the Urologist. It was several weeks
later that under the care of the Urologist, I was given all
the standard urological exams and tests. Nothing came up abnormal
in the tests. And after discussing the test results, the doctor
said to me, “There are some things that do not show up on
the tests you have had. Just to make sure I want you to have
an ultrasound exam of the abdominal area.” After the ultrasound
exam, when I was getting dressed, the doctor came into the
room and said, “There's something there, but we can't tell
what it is. We want you to have a CT Scan.”
Which brings us
back to that Monday morning in April of 1992, sitting in the
reception area at a hospital, in Santa Rosa, California waiting
to see the Chief of Surgery to discuss the results of the
CT Scan. I asked Carolyn to go with me because the Urologist
told me that the scan had revealed “a mass on my pancreas”.
Carolyn and I were
married on December 7, 1991. We both had been married before
and had each raised three children from our first marriages.
All of the children were grown adults and were not living
at home when our marriages had ended in divorce. Carolyn had
been divorced several years before, and I had been divorced
in 1990. Carolyn and I had then, and still have, that rare
bond of faith and trust in each other that sometimes develops
and grows between two people who love one another and are
fortunate to have met. We worked together at the same company,
and we had become friends. We both fervently denied any interest
in being married again, but our friendship grew into a deep
respect and love for each other that neither of us had known
before. I needed her with me for this interview.
After our marriage,
we settled into the daily routine of work and play, and we
were extremely happy with our lives. We were looking for a
house to buy so we could move from our rented house and get
a little closer to work. I was feeling good and didn't think
that I had any health problems, until I heard the results
of the CT Scan.
We were ushered
into an examining room shortly after the appointed time. The
Chief of Surgery came into the office shortly after we sat
down. He introduced himself and put some x-ray films onto
the illuminated viewer on the wall so we could see them. His
manner was quite brusque as he showed us the x-rays, which
showed a mass about the size of a good sized lemon on the
tail of my pancreas. He explained that it was not possible
to say for sure that it was malignant, but he indicated by
all his comments that in all probability it was. He went on
to tell us that pancreatic cancer is a particularly treacherous
type of cancer. He said, “The survival rate of patients who
have pancreatic cancer is about two percent. I have known
a number of doctors who when diagnosed with pancreatic cancer
have elected to not have surgery, but to go out and do the
things they want to do and enjoy what time they had left.”
What he meant, of course, was that with the small chance of
survival, it would be better to not go through the trauma
of surgery and treatments, but to go and enjoy the time left
in my life. He left little doubt in our minds about how he
felt. I looked at Carolyn and she was in shock at the statements
the doctor had made. I guess I was not as surprised, because
I had heard a number of times about people who had been diagnosed
with pancreatic cancer and didn't live long after they found
out about the disease. I will always regret that I had not
told Carolyn about my doubts before meeting with the doctor.
I think if I had, she would not have had to endure the shock
of his saying what he did. But, when he made that statement,
I looked across the desk at him, and I said, “That's not my
choice”.
The surgeon looked
back at me, sat back in his chair, and said, “Okay. If that
is what you want, I will do what I can to move you ahead in
the surgery schedule, and I'll start to make the arrangements
today. I want you to know what we're facing. This will be
an extensive abdominal surgery. I will have to go in and look
at everything and if I have to I'll take out your spleen,
I'll take one of your kidneys, you only need one, I may take
part of your stomach, and part or all of your pancreas. But,
if I get in there and find out your liver is involved, I'll
sew you right up and do no more. I want you to go and see
if you can give some blood to be used in surgery. See you
next week.”
As it turned out,
I was too anemic to give my own blood, and after several weeks
of trying to build up my own blood we gave up and agreed to
have donor blood. True to his word the surgeon did move me
up on the surgery schedule, and he was ready to take me into
the operating room on June first.
During this time,
Carolyn and I had been looking at houses in and around Santa
Rosa. Looking at houses helped to keep our minds off all the
other things going on with arrangements and tests leading
up to the coming surgery. As luck would have it, we found
a house we really liked and it was close to work and met the
other criteria for a house we wanted. So, we bought it. Now
the job was to go through escrow and have the paperwork closed
in time to get everything done before I would have to go in
the hospital. We did it, just. The weekend before June first
we moved into the new-to-us house. We were lucky to have friends
and family help with the move and we had about 15 or 20 people
moving things into the house and arranging furniture, putting
up pictures and trying very hard to do everything for us.
Carolyn and I had prepared for a cook-out for the whole group
and on Sunday afternoon we barbecued sausages and burgers
and served salads and other good things for everybody. After
we said goodnight to our last guests about 8 o'clock Sunday
night, we sat and relaxed for a few minutes. Strangely we
didn't talk much about the next day. We talked about our friends
and family, their kindness in helping with our move, and some
of the things that occurred during the day that put smiles
to our faces. We knew that all of our friends and family had
us in their thoughts and prayers that night. After a while,
we decided to get some rest for the next day.
The next day, Monday
morning at 6 o'clock, we presented ourselves to the admissions
desk at my hospital in Santa Rosa. After the paperwork and
hospital prep work, they rolled me into the operating room
about 8 o'clock the morning of June first. The operation lasted
over three hours. Carolyn, with her children and one of our
very good friends, had an arduous wait in the waiting room,
but she told me, “It would have been tougher if the surgeon
had come out in a short time, because that would have been
a sure signal that there was too much involved, and he had
‘sewed you right up'.” After the surgery, I had the easy part.
I was kept pretty well out of it for two and a half days in
intensive care. I remember watching a digital gauge of my
blood pressure and thinking, “Boy, that's as low as I ever
saw it”. And once when there were a lot of people milling
around my bed, one of the nurses tripped over the mass of
tubes that were stuck in me at various places. When things
were stabilized they moved me to my room and even though I
was still hooked up to many tubes, I was able to get up and
walk around the halls pushing my tree of IV bottles. Every
day, for the next few days, the surgeon would come into my
room and ask me, “How are you, have you had any gas yet?”
At that point it was really good to have a joke to laugh about
so the whole family took advantage of it, and everybody would
ask me the same question.
Thanks to a surgeon,
wise enough to determine that a diagnosis of a hernia was
wrong, and who cared enough about a patient that he suggested
I should see a urologist for the symptoms I described; to
a urologist who was steadfast in his efforts to diagnose my
illness; to an incredibly skillful surgeon who had a lousy
bedside manner but great hands and great knowledge, who took
out the mass and a third of my pancreas, explored all the
other organs and found no evidence of their involvement, and
then “sewed me up”; and to the
awesome support of my wife, Carolyn, and family and friends,
I came out of the operating room with a new chance on life.
The mass was malignant.
The hospital did all the lab tests and presented the tests
and surgical report to the cancer board, a group of doctors
who examine unusual cancer cases. All this was happening during
the ten days I was in the hospital and several weeks I was
recovering at home. The board was not able to come to an agreement
on what type of cancer I had. So, the hospital decided that
I should have my case reviewed by a University hospital. The
local hospital made the appointment for us to see a panel
of two doctors at the University the next week. Carolyn and
I loaded up the files and headed to the University. The doctors
there gave me a brief exam, and we talked with them for several
hours. They took the files and told us to come back in a few
hours. We had leisurely lunch out in the avenues near Golden
Gate Park, and found ourselves back in the waiting room at
2 o'clock in the afternoon. Meeting with the doctors, in a
conference room there, they confirmed that the type of cancer
I had was pancreatic cancer. They told us there were three
possible treatment recommendations they would make:
1. Do nothing and
assume that the surgery cured the cancer.
2. Have radiation treatments
only.
3. Have chemotherapy
and radiation.
My hospital told
me that the choice was mine. So, I told them that my choice
was to do everything available to make sure that the cancer
was gone and would stay gone.
At the end of July
we were ready the start treatment. Five days a week for twelve
weeks I had radiation treatments, along with chemotherapy
twice a week that was designed to enhance the radiation. During
that time my oncologist ran every test he had available to
him. Included were two bone scans, CT Scans and a blood test
every few weeks along with constant encouragement for the
treatments. Completing the treatments in October, I went on
to see my oncologist for the next three years, until we moved
out of the state. At our new home I was fortunate to have
equally good follow-up examinations from our new HMO and after
13 years I no longer see an oncologist, but my primary care
doctor follows up with a blood test every year.
Today, I have no
recurrence of cancer and I am a happy, healthy 76 year old
man. Carolyn and I have the pleasure of enjoying our children,
grandchildren and great grandson. How lucky can
one man get?
I believe, for the
most part, you make your own luck. But with the love and devotion
of my wife Carolyn, the good thoughts and prayers of our family
and many good friends, the skill and concern of the medical
staff at my hospital, and luck by any description, my story
has a happy ending!
I know that many
people have not been as fortunate as I have been, but maybe
someone reading my story will question the suggestion that
an illness is not curable. Maybe they will believe it is worthwhile
to pursue every course of action available to them to capture
the opportunity to be cured. And that good medical care, a
loving family and friends, and your own kind of luck can save
your life.
I hope so!
Glen
G. 3/20/08 |
I'm
writing this to celebrate my mother's Two-Year Anniversary
of her diagnosis; this is for you mom:
It was exactly two
years ago today that we received the news that my mother's
pancreatitis was actually pancreatic cancer. She'd been in
and out of the hospital from January 31, 2006 - March 7, 2006
with what we thought was pancreatitis or gall stones, but
when the phone call came with the diagnosis it devastated
our entire family. At only 55 years old we all thought mom
was too young for this, but we now know that pancreatic cancer
can strike anyone.
In an effort to
help my mom who was too tired, sick and weak to determine
her own course of action, I developed a strategy plan and
quickly became President of Team Operation Kick Cancer's A**.
We learned that mom's tumor was still small enough to potentially
make her a candidate for the Whipple and we got on a plane
to travel to see if a cancer center would operate on her.
On March 23, 2006 my mother underwent the Whipple procedure
and our family held vigil for 12 hours in the waiting room,
constantly calling home with updates for the hundreds (literally)
of people who were scattered in churches, schools and at home
praying. At 8:30pm that evening we got the news we yearned
to hear: clean margins, tumor gone, mom did well.
Two months later,
and cancer-free, mom started a regimen of 5-FU and Gemzar,
6 weeks of daily radiation, and a follow-up of 5-FU and Gemzar.
For 11 months the cancer was in check but in January 2007
her CA 19-9 had risen quickly and we all knew what was coming
next. The cancer had returned to her liver and surrounding
lymph nodes. Team Operation Kick Cancer's A** was started
again. Back to the cancer center we went, but when we learned
that surgery wasn't an option this time, mom decided to become
part of a clinical trial at our local hospital and receives
chemo in bi-weekly doses which she wears for 48 hours.
It was 12 months
and 3 weeks ago that the treatment was started. My mother
feels well, looks good and maintains an ACTIVE (sometimes
too active we think) lifestyle. She is a survivor in every
essence of the word.
Yesterday she had
another CT scan and we got some more encouraging news - the
largest tumor in her liver appears to have potentially shrunk
and the center appears dead. The cancer is still there, but
she can, does and will continue to live with it until it goes
away - we all believe this and pray daily.
I wanted to share
my mom's story with all of you because she is the definition
of hope, faith and courage and we do believe in miracles and
think we've had a few cross our path already. She is a testament
to those that believe you cannot live with this disease -
you can, you will.
I'm not the one
living with cancer, but I live it every day with my mother
and I can tell you that it's her attitude, her faith and her
determination that keeps her fighting this battle with vitality
and strength. Even when the cancer returned, which we all
know is common with pancreatic cancer, mom has not given up
- she's my hero and she makes me want to be a better person.
I'm getting married
this summer and asked my mom over Christmas if she would like
to walk me down the aisle with my father. To my surprise,
she said no (she and dad are happily married too). Then she
told me that she wants to celebrate seeing me walk down that
aisle and she's waited her entire life for that moment. And
Mom, when you read this, I want you to know that when Dad
and I walk down that aisle one of the greatest joys of my
wedding day will be seeing you there at the end, watching
the daughter you've raised, taught, loved and inspired take
her husband and start our life together. There will be tears,
but they will be of sweet joy and celebration.
Mom, Happy Anniversary.
Keep fighting, keep believing and keep your faith. We are
right there with you every step of the way and I love you
very, very much. Cheers to you today and to MANY more anniversaries!
Kellie
S., Pittsburgh, PA 3/7/08 |
Hi.
I was diagnosed with stage IV pancreatic cancer which spread
to the liver in January ‘06. I had never smoked, don't drink,
did exercise and was in good health up to this time (although
there is a history of cancer on both sides of my family).
Since then I went on Gemzar and Tarceva for about 15 months.
My scans had been showing no detectable cancer for the last
12 months. I had a biopsy on my liver which turned out negative
and tried going off chemo for about 6 weeks. Unfortunately,
the cancer returned and I went back on the same chemo regimen.
It didn't work as well the second time and in October ‘07
I switched to Gemzar and oxaliplatin. That seemed to work
as my last scans from January ‘08 are clear again.
I write this to
offer hope to everyone who has to go through this. I have
relied on my faith, family and friends to get through this
and learned that these are the most important lasting things
in my life. I don't know for sure what my future holds but
I am sure that cancer and death will not be the end for me
since my faith promises me a perfect cancer free life after
this one. I have found a good cancer support group at a church
and talking to the many survivors there has been a huge benefit.
I also have been fortunate to have kept working most of the
past 2 years and I try to eat healthy and do some exercise,
mostly walking and light weightlifting, to keep my strength
up. I pray my story will offer some encouragement to you.
Mark
P., Bartlett, IL 2/22/08 |
I
have been looking for a site like this since being released
from the hospital in April 2006. No one else can really relate
to my experience, and here I was able to read about other
survivors. And, if you look at the web sites and the stats,
you would think that there are none! Reading these inspiring
stories has given me such a lift.
I was told that
I had a "mass" on the tail of my pancreas in Dec
2005, with the only chance of survival being surgery! Honestly,
after going home and reading related web sites, I thought
I was going to die of fear before I would even have the surgery.
I went into denial for 6 weeks. Then I thought, I'll just
juice-fast that 2.5 cm tumor away. I fasted for 21 days on
the master cleaner-lemonade diet. I felt great after and lost
some needed weight, but the repeat CT scan showed that it
was still very much there. So I surrendered and consented
and had a distal pancreatectomy and splenectomy. I now have
50% of my pancreas. One of the issues following surgery was
menopause; hot flashes started about the day I got home from
the hospital, and I think I've aged a lot. Oh well. Panic
attacks, which are so not me, are an issue right now. I was,
in my youth, a rollercoaster junkie; now I drive slowly in
the slow lane. Depression set in because my job of 22 years
refused to take me back when they found out what kind of surgery
I had. Don't worry, I am pursuing that issue. And, you know
what can follow job loss, (I am a sub-prime mortgage poster
child), STRESS as never before, bankruptcy just to save the
house, snowball, crash, burn. So, this all has affected my
healing process. But, I am keeping my head up.
A CT scan last April
showed all is well and I will expect the same when I go for
another this April. Although, I need to believe that I am
healed and stop tripping every time I feel any kind of pain.
Once the stress level of being broke subsides, I know will
feel more confident. Because you know how you feel when you're
broke, pretty darn lousy, right? I will use this site now
for continued support.
I am so very grateful
for my life now. I will admit that I used to be a little over
confident, a little arrogant, but this experience has forever
humbled me. I am a soon to be a 51 year old African American
woman who intends to live life beating the odds and those
stats that I've decided don't apply to me. By the way, I don't
eat junk anymore. I'm loving that tonic called Noni, I am
eating those digestive enzymes, the omega 3, flax oil, multi-vitamin
with iron, guzzling carrot juice, and trying to do something
about this ugly belly fat. I am using the very dated Jane
Fonda work out tapes. Blessings to all who read this and much
success in staying positive and healthy!! BE WELL, LIVE LONG!!
Sheila
D., Berkeley, CA 2/10/08 |
In
January 2007, I began experiencing symptoms of jaundice with
dark urine, light stool, and terrible itching over my entire
body. A few months earlier I had joined Weight Watchers because
I had been battling obesity for years and was finally fed
up with being so uncomfortable. I had been diagnosed with
diabetes in 1999 and the weight did not allow me to manage
the disease very well. After I had lost about 30 pounds, I
noticed that my blood glucose levels were going up instead
of down; in fact, they were hovering in the high 400s to 500s.
Realizing something wasn't right, I went to my primary physician
for a comprehensive blood test.
A few days later,
I received a phone call from the doctor. He said my liver
enzymes were off the chart and he wanted me to have an abdominal
ultrasound and make an appointment with a liver specialist
to see what might be going on. Obviously this news was disturbing
and I asked if this could be life-threatening. He responded
that it was probably a treatable condition and that it was
not life-threatening. Was he ever wrong!
A week and a half
later I went to the liver specialist and after listening to
my description of the symptoms and reviewing my blood test
results, he said he wanted me to have an MRI immediately,
that day if possible, but no later than the next morning.
I went in the next day and was told it would be a few days
before the results would be available, but I got a call that
afternoon from my doctor. He had gone to the hospital shortly
after the test was completed and asked the radiologist to
read the scan as soon as possible. The news was disturbing,
but the reality of the situation had not registered with me
yet. Even though I was told there appeared to be a mass in
the pancreas and that I should be "very" concerned,
I had no knowledge of pancreatic disease, so I just trusted
that everything would be alright. In the same conversation,
this doctor told me that he had already made an appointment
for me at a major hospital in Chicago to have a test called
an ERCP. He saw the urgency in the situation and acted accordingly.
To this day I believe I owe this man my life.
The results of the
test revealed a 2 centimeter mass on the pancreas that appeared
to be contained. The next appointment was with the chief of
surgery who told me that surgery was the logical next step
and that he would perform a Whipple procedure. At no time
did he mention cancer, and I was confident that there was
none present.
I was in surgery
for about eleven hours, but from the onset, I was blessed
with one miracle after another. After being told I would likely
spend up to three days in the ICU and ten to fourteen days
in the hospital, I spent less than twelve hours in the ICU
and was home in just under seven days. It wasn't until I went
back to have the staples removed that I was given the news
that the diagnosis was cancer. Even at this point, however,
the doctor was confident that he had caught it in time and
that I would be fine. I knew only time would tell, but I am
grateful to this man for his expertise as well as his positive
attitude and perpetual encouragement.
The recovery from
the surgery, which took place in mid-March, was long and somewhat
tedious due to a few infections of the wound, but I am doing
well now.
The message I want
to send to everyone who is diagnosed with this terrible disease
is that it is treatable and extended high-quality life is
not only possible, but likely with the right attitude and
faith.
Paul
B., Wheaton, IL 2/7/08 |
It
all started in 1998 when I was told I had large tumor on my
left kidney. I had the tumor and adrenal gland removed that
year. Then in May 2002, I was told I had pancreatic cancer
and an option of two more months to live or to go through
a very complicated and "dicey" operation with a
maximum 50/50 chance to survive. The surgeon found out during
the procedure that my whole pancreas was filled with a tumor.
He removed my spleen, ENTIRE pancreas, gall bladder and bile
duct. They basically "lost" me on the operating
table due to heavy bleeding, but were able to bring me back.
It was tough recovering.
I had to go through chemo treatment for 6 months. I changed
careers, moved from overseas to the US and got on with life
thanks to family, friends and employer support.
In 2005, it was
that time again. Some pancreatic tumor cells had obviously
been left behind. I had a large tumor on my stomach that had
fused with my colon. I proceeded with 4 months of chemo and
radiation, which was extremely tough. Due to the chemotherapy,
I lost all the skin on my feet and hands. I then had half
of my stomach and part of my colon removed. After this, I
went through chemo treatment again. In 2007, cancer stuck
its ugly head up again showing enlarged and growing lymph
nodes in my abdomen. We are treating it and that seems to
be working with minimal side effects.
Soon it will be
6 years without a pancreas! The last 5 years I have been working
full time, traveling the world for my company. I am getting
tired, but it is worth every extra day to be able to enjoy
friends, and family. There is hope for everyone in the darkest
of hours. The medical profession has not seen it all just
yet!
Dennie
N., Cary, NC 1/23/08 |
I
am 51 years old. On August 16, 2007, I was diagnosed with
pancreatic cancer after having symptoms of painless jaundice
and itching. I was very lucky that, due to the size and location
of the tumor, I qualified for the Whipple surgery. I was sent
to a surgeon at a cancer center in St. Louis, MO. The surgeon
and his wonderful staff performed my Whipple surgery on September,
11 2007. I was up walking the next day and released from the
hospital on September 17, 2007. My recovery was amazing according
to my doctors. I only had pain from the incision, and that
subsided after the first week. I was taking walks and playing
with my granddaughters the next week. On October 24, I started
a 28 day treatment session of radiation with 6 days of chemotherapy
with the drug 5-FU. I had no side effects. I was then given
a month off and then resumed my second round of treatment
starting January 3, 2008. This round I am receiving straight
chemotherapy with a pill twice a day for two weeks of Xeloda
and a chemo drip once a week of Gemzar. Again, I have had
no side effects.
I will fight this
battle with every ounce of fight I have in me. I know that
without the love and support of my loving husband, my courageous
daughter and her husband, my brave son, my three beautiful
granddaughters, my father, my stepmother, my sister and brothers,
brother-in-laws, sister-in-law, nieces, nephews and a great
group of friends, my outlook may not have been so bright.
However, I feel better now than I have in years. I am hoping
after this round of treatment, I will be finished and will
just continue to get regular checkups and cat scans showing
no signs of the cancer. Though this is not a journey most
people would want to take, it has changed my life. I am thankful
everyday that I awake for having another day with my family
and friends and I am thankful again at night for the wonderful
day I have had. For to me, everyday is a gift. Make the most
of them.
Colleen
N., Bloomington, IL 1/10/08 |
At
age 49 I got the news that brought me to my knees. I had stage
IV pancreatic cancer and I had three months to live, four
months if I took the chemo treatments, but my quality of life
would be very poor due to the harshness of the treatments.
Naturally, I got mad as heck, why me? I don't drink, smoke
or even use caffeine. I had never been sick other than the
flu and I was in great shape physically. This can't be happening!
For those of you
that got this same message, I assume that you had the same
reaction: fear, disbelief, why me and ANGER. I think it is
normal to feel that way.
I went home to die
feeling very sorry for myself. After a couple of days I began
to think straight again and it came to me. I never quit anything
in my life, I am stubborn to a fault and I owe it to my wife
and two little boys to fight this thing that I have. I will
not go without a fight if only to show my kids that you can't
give up when the going gets tough.
I started a chemo
routine. Every other week on Thursday I had Gemzar and Fridays
I had oxaliplatin. I felt terrible for a couple of days but
I was back at work on Mondays and did not miss a day other
than my chemo days.
To make a long story
short, I had great results from the treatment. After 48 rounds
my tumor had been reduced from 12cm to 2cm, and has been stable
for 10 months.
I have a message
that I want to deliver to those of you getting ready to start
treatment.
1. It takes a lot
of energy to be mad, being mad that you have cancer is like
being mad at the weather, it does you no good. Take the energy
that you waste being mad and put it towards beating the enemy
(cancer). You will need every ounce of energy you have, don't
waste it.
2. Remember how
lucky you really are. If it was one of my children or my wife
that was stricken with cancer, I would be on my hands and
knees begging to please let it be me, not them. Well, it is
me, so my prayers have already been answered.
3. Don't give up...
Blair
J., Matthews, NC 12/17/07 |
My
husband, Ralph, after many tests which indicated no sign of
cancer of the pancreas, was finally diagnosed in October of
2006. He was given 6-9 months to live if the cancerous tumor
could not be shrunk. And we were given little encouragement.
However, after almost 6 weeks of chemotherapy and radiation
at a cancer center in our hometown of Shreveport, the tumor
was shrunk by about 70%. He was then a good candidate for
the Whipple. On February 5 of 2007, he underwent an 8 hour
surgery by a brilliant and highly dedicated pancreatic and
liver transplant surgeon. Ralph's recovery was difficult but
he fared better than most, especially considering his then
age of 67. I am happy to report that he is in great shape.
He lost a lot of weight but is now a trim 157 pounds and has
been getting on our roof these past few months to clean out
the gutters. His quality of life is better than it was a year
ago. He does not digest fats...they go right through him.
But, he has no pain and we think this is a miracle.
Charlene
B., Shreveport, LA 12/1/07
|
In
March of 2002, having been widowed only a year before, after
caring for my very ill husband for seven years, I began feeling
very ill. My first symptom was extreme itching on my torso.
I was sure that after seven years of caring for Pete, my house
was probably not as clean as it should be; therefore, I imagined
that there might be fleas in the house from my tiny Pomeranian.
Well, I got some powerful flea bombs and let them do their
work in the house while both the dog and I spent the night
in a motel. We came home hoping to have a restful night....not
so. I itched even more. Then, I decided that there must be
dust mites in my home. I hadn't had the carpets and upholstery
cleaned in a few years since I was so overwhelmed with other
matters. I ordered some very expensive dust mite cures online,
proceeded to apply them, spent another night in a motel, and
came home to the very same problem.
At this time I was
teaching part-time in the International American Language
Center in our local university. I began desperately spraying
my stomach area with cortisone spray....I couldn't make it
through an entire class without some relief, so I would dash
across the hall to the bathroom to spray about every fifteen
minutes. My students, I am sure, thought I was absolutely
crazy!!
Then, about two
months later, I had black urine and a white stool, a symptom
of jaundice. My physician, a dear friend who had cared for
Pete lovingly during his last years, said I was jaundiced
and that we would test until we found out why. I was one of
the lucky ones whose tumor blocked a bile duct; otherwise,
pancreatic cancer is usually a silent killer. Within forty-eight
hours after having a stent implanted in my gall bladder, my
liver enzymes had improved greatly. My physician made arrangements
to go to an institution where two physicians were conducting
a study of pancreatic cancer and trying very hard to improve
the possibility of life after the Whipple. In my estimation,
these two doctors are as close to God as a human being can
get. They are dedicated, very much involved, and highly skilled.
I know that I would not be alive today were it not for their
efforts. They and their staff members were available any time
24-7 after I returned to my son's home in Seattle. At the
slightest notion of a problem, I was placed back in the hospital
under their care imm | |