Risk Factors: Family registries

There is an increasing amount of research into causes of and early detection for pancreatic cancer.  In order to advance this knowledge, family registries have been established in hopes of finding common aspects in families with multiple cases of pancreatic cancer.  The registries examine environmental agents, lifestyle habits, and/or history of pancreatic cancer along with the incidence of other cancers in the family.  Researchers hope that discoveries among families with an increased incidence of pancreatic cancer will lead to improved understanding of this disease.  Participants in the registries include patients and family members.  After filling out a questionnaire, participants may be asked to provide a blood sample for further genetic analysis.  Family registries themselves do not provide early detection for family members of pancreatic cancer patients.

The chart below lists the family registries available in the United States and includes one in Ontario, Canada.  The name and location of each program are provided in addition to contact information and criteria for participation.  Please note that these studies are national and not limited to participants in the state of that particular registry.   The Mount Sinai Hospital study is limited to Ontario, Canada.  The Johns Hopkins Hospital study welcomes worldwide participants.

The information and services provided by the Pancreatic Cancer Action Network, Inc. are for informational purposes only. The information and services are not intended to be substitutes for professional medical advice, diagnosis or treatment. If you are ill, or suspect that you are ill, see a doctor immediately! The Pancreatic Cancer Action Network does not recommend nor endorse any specific physicians, products or treatments even though they may be mentioned on this site. In addition, please note that any personal information you provide to the Pancreatic Cancer Action Network's associates during telephone and/or email consultations may be stored in a secure database to assist the Pancreatic Cancer Action Network, Inc. in providing you with the best service possible. Portions of the constituent data stored in this database may be used to inform future programs and services of the Pancreatic Cancer Action Network, Inc., and may be provided in aggregate form to third parties to guide future pancreatic cancer research and treatment efforts. The Pancreatic Cancer Action Network, Inc. will not provide personal identifying information (such as your name or contact information) to third parties without your advanced written consent.  120306