When I was first diagnosed I went to a specialist in St. Louis, MO. I did agree to do my part and signed up for a clinical trial. When the Whipple surgery was scheduled, my pancreas was inflamed and the doctors had to stop the surgery. I also had a bad reaction to the drug in the clinical trial so I had to stop participating. I am so sorry I could not help research.
I then started chemotherapy. My doctor was very aggressive; I took four different chemotherapy drugs that really put me down. When the chemotherapy was completed, they scheduled the Whipple surgery again. It was successful and my doctor was pleased. I had 19 lymph nodes removed; three were cancerous. After I recovered from surgery, I continued with the chemotherapy treatment - this time three drugs. They cut out one of the drugs because it was too strong for me the first time. I had about every bad reaction you could have and it was hard to get through it. I have now been off chemotherapy nine weeks and I am feeling so much better.
I had a pet scan a couple of weeks ago and the doctor was very pleased with the results. My doctor (oncologist) feels I will have many more years to survive. I am surprised I have done so well and I am so thankful. I do not know of many people who have survived with this. I feel so fortunate. Thank you for reading this. I had my Whipple on July 21, 2011.