Join the Patient Registry to accelerate pancreatic cancer research.

What is the Patient Registry?

Your experience. Your legacy. Your registry.

The Patient Registry is a global online database created to look for patterns in treatments, side effect management and diagnostics that will lead to improved treatment options and outcomes for patients. By joining our quickly growing community and sharing your experiences, you’re giving researchers access to crucial data that will help make discoveries. Whether you have been diagnosed with pancreatic cancer or have provided care for someone with pancreatic cancer, your contributions are meaningful. Together, we will move pancreatic cancer research forward.

How the Registry Works

The registry includes activities with questions about the patient, their medical history and their current health. The activities can be completed over multiple sessions and updated at any time. The information provided is completely secure; the user decides who sees the information, how it will be used and if they want to be contacted by researchers.

Create an Account

Patient Registry Video

See why the Patient Registry means so much to pancreatic cancer survivors and medical researchers.

Who is Eligible?

  • Anyone who has been diagnosed with pancreatic cancer, including those who are currently receiving treatment and those who have received treatment in the past, can fill out a profile for themselves

  • Anyone who provides or has provided care for someone with pancreatic cancer can fill out a profile for the person they provide or provided care for

“One of the key ways that we can make an advance is to have patients and families help us, as researchers, to solve the problem of pancreatic cancer.”

— Dr. Diane Simeone
Director, University of Michigan Pancreatic Cancer Center
Scientific and Medical Advisory Board Member, Pancreatic Cancer Action Network

Patient Registry Resources

Questions about the Patient Registry?

Read our FAQ

Our PanCAN Patient Services Case Managers can answer any additional questions you may have and connect you with our Patient Registry Manager to assist with setup or any other aspect of your account.

Case Managers Are Available Monday – Friday, 7 a.m. – 5 p.m. PT

Sign Up for the Patient Registry
 

Invite Others to Join the Patient Registry

Please extend an invitation on your Facebook or Twitter page for other patients and caregivers to join you in helping advance pancreatic cancer research.

  • "Be part of a community that’s helping advance pancreatic cancer research. Join me on the Patient Registry! #WageHope"

  • "I’m participating in the Patient Registry @PanCAN! Join me in supporting research for #pancreaticcancer"

Additional Resources

  • Know Your Tumor®

    Learn about the biology of your tumor to make informed treatment decisions and contribute to future research.

  • Clinical Trials

    Discover why better treatment options for patients will only happen through clinical trials and how to find trials near you.

  • PurpleStride

    Join the fight against pancreatic cancer at our inspirational walk/run events. Find an event near you to raise funds and awareness.

Privacy Assured Logo

Respecting your wishes is our priority. To help us protect your individual privacy in accordance with rules that you establish, we harness the power of Private Access with the goal of helping you make your health information available to top researchers for your condition – under your own terms.