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A pancreatic cancer diagnosis can be overwhelming for patients and their families. But those facing this disease are not alone. Survivors and caregivers who have been in their shoes can offer a wealth of information, support and inspiration. Here are some tips from survivors and caregivers in the Pancreatic Cancer Action Network (PanCAN) community.
“While the nature of pancreatic cancer encourages immediate action, it is prudent to consider alternatives to standard of care, especially consulting with PanCAN Patient Services for treatment information, including clinical trials.” – Richard
“Get second and third opinions on treatment options. Cannot stress that enough.” – Scott
“I wish I had known how different each person’s journey is.” – Janeane
“Don’t give up. I know the impact of this diagnosis. You are shocked. You are terrified. But you can fight. Get information from the Pancreatic Cancer Action Network, and join a local affiliate. Look for clinical trials and new treatment options. Find the right doctor. Get support from others who have been there.” – Leonora
“I wish I would have known the impact of a dietitian (and enzymes!) in your journey. ” – Julie
“Don’t be afraid. You are your own best advocate, and education is the best thing you can do for yourself. Be open with your doctor – tell them everything that’s going on and ask as many questions as you need to.” – Gil
“Keep your research isolated to legitimate websites and choose medical personnel who care about your outcome and who focus on hope, not on loss.” – Maggie
“To help yourself, you must educate yourself. You have to find hospitals and doctors that specialize in your specific type of pancreatic cancer.” – Marcie
“I wish I would have known about the Pancreatic Cancer Action Network from the beginning. It would have made a difference in my husband’s quality of life.” – Magee
“Do as much research as you can, and don’t be defeated by what you find. Have someone by your side always. Information is overwhelming and you will probably only hear half of what is said. Keep a journal. Exercise. Ask questions…lots and lots of questions.” – Whitney
“I wish we had known that chemo was not the only option.” – Alicia
“We read and talked to everyone that knew anything about cancer. Have Pancreatic Cancer Action Network along with us now. They have wonderful material and help.” – Gerald
